NRXN1 Research & Family Conference

February 20 - 22, 2026

Philadelphia, PA

Design featuring a light bulb with a gear and circuit inside, surrounded by purple text that reads 'Forging a network of discovery.' Below the light bulb, text states 'NRXN1 Research and Family Conference, Philadelphia, February 20-22, 2026.'

Join us for our first ever in-person NRXN1 Research & Family Conference! There will be opportunities to participate in research and learn from clinicians and scientists, and connect with other families.

See you in Philly!

Conference Information

Travel Grants
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Register
Hotel
Program
Explore Philly
Sponsorship
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Registration for this event has ended

How much does it cost?

For adults (14+):

  • Early registration (before October 31st): $100

  • Regular registration (Nov. 1 - January 1): $150

Children 14 and under are free to register.

What is included with registration?

Your registration helps offset the costs of the hotel, audiovisual equipment, bringing in researchers, as well as several meals and events for families. With registration, you will also receive a ticket for a welcome reception on Friday night as well as lunch and dinner on Saturday.

Who needs to register?

Everyone 3 and over needs to register. Children from 3 -14 are free to register, but we need to include them in our headcount for meals and events.

Hotel

The conference will be held at the Doubletree by Hilton near the Philadelphia Airport. The hotel offers a shuttle to and from the airport and there are multiple dining options at the hotel (grab and go coffee shop, a bar/lounge, and a restaurant). For those traveling with children, please know that there is a chance that the pool (currently advertised) will not still be available at the time of the conference due to renovations.

We have reserved a block of rooms for attendees. The negotiated nightly rate is $119. The cutoff to secure this group rate is 12:01am (EDT) Thursday January 29, 2026.

Reserve your room
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Doubletree by Hilton Philadelphia Airport

4509 Island Ave, Philadelphia, PA 19153

Explore Philly!

The 2026 Research & Family Conference will be held in the ‘City of Brotherly Love.’ With its history, cultural landmarks, museums, and of course its cheesesteaks, Philadelphia has something to offer everyone in the family. When you’re not at the conference, be sure to check out the Philadelphia Art Museum, the Franklin Institute, Independence Hall, Reading Terminal Market, the Philadelphia Zoo, or Camden Adventure Aquarium (just over the river—don’t miss the hippos!). Click here for more information on things to do while visiting Philly.

Check back here from time to time. We’ll add more details about our host city as we get closer to the conference.

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Nighttime scene of a bustling outdoor market or restaurant with bright neon signs, including a large sign that reads 'Geno's Steaks' and a neon sign of a cheeseburger on top of a building, with people walking and cars parked around.
A city skyline with skyscrapers, a river, and a historic government building in the foreground, under a partly cloudy sky.
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Seeking sponsors to help us meet our conference goals!

Do you know a business who would like to support NRXN1 Network’s mission to improve the lives of families affected by NRXN1 Deletion Syndrome?

Learn more
A sponsorship benefits comparison chart with columns for different sponsorship levels: Naming Sponsor, Diamond Sponsor, Platinum Sponsor, Gold Sponsor, Silver Sponsor, and Community Partner. Rows list benefits such as contribution levels, naming rights, logo placement, ad inclusion, recognition, and complimentary registrations. Check marks indicate which benefits each level includes, with sponsorship amounts ranging from $15,000 to $1,000.
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Thank you to to our Silver+ Sponsor!

Need help funding your travel?

Check out these potential funding opportunities to offset conference costs for families affected by rare diseases.

  • The Rare Disease Education Support Program is designed to offer rare disease patients, their families and/or caregivers an opportunity to participate in educational programs and conferences that offer rare disease content. NORD’s program provides financial support for registration costs and limited assistance with associated travel and lodging costs for conference participation.

  • Each state has their own Arc chapter, so make sure to check out yours. Some chapters provide grants to enable people with developmental disabilities and their family members to attend conferences of their choice that are directly related to developmental disability issues.